Have you ever heard the phrase “seeing is believing”? This old saying refers to the fact that, in general, you need to see something before you can accept that it really exists or occurs. But the problem is, sometimes, we don’t have the means to clearly “see” what’s really going on beneath the surface.
This is especially true when it comes to difficult to “see” but very real conditions like multiple chemical sensitivity. Because this perplexing and difficult-to-pinpoint illness doesn’t have changes that we can clearly and consistently identify and measure, there isn’t a definitive way to arrive at a diagnosis. But that might be changing soon.
Recent research has uncovered some promising results that might just bring us one step closer to being able to officially see and measure the underlying changes triggering multiple chemical sensitivities – meaning we may eventually be able to more accurately diagnose this life-disrupting condition. So let’s dive into exactly what multiple chemical sensitivity is and the exciting new research surrounding its diagnosis.
What Is Multiple Chemical Sensitivity?
Multiple chemical sensitivity, also referred to as MCS, occurs when you have a negative reaction to low levels of certain chemicals within your everyday environment that are generally well tolerated by those without a sensitivity. Meaning, if you have MCS, you will typically have a reaction when exposed to certain chemicals, while others around you are entirely unaffected.1
These chemicals can come in all different forms, stemming from things like:2
- Cleaning products
- Fragrances
- Off-gassing from furniture or building materials
- Vehicle exhaust fumes
- Plastics
- Detergents
- Pesticides
- And more
These chemicals may seem almost imperceptible to others. But if you have multiple chemical sensitivities, encountering certain chemicals can be the spark that ignites a cascade of unpleasant and disruptive symptoms. Let’s zoom in on some of the perplexing symptoms that can be seen in this complex condition.
What Are the Signs and Symptoms of Chemical Sensitivity?
Symptoms triggered by MCS are often vague and can be challenging to trace back to the offending culprit. Symptoms typically spike shortly after exposure and begin to diminish and eventually disappear when these environmental chemicals are removed. Some of the more common signs and symptoms seen in MCS include:3,4,5
- Headaches, dizziness, and lightheadedness
- Irregular heartbeat
- Rashes and skin issues
- Nausea, indigestion, and general stomach upset
- Upper respiratory discomfort and/or breathing problems
- Allergy-like symptoms such as runny eyes, sneezing, and/or chest and throat pain
- Arthralgia or unexplained joint pain
- Intense fatigue
- Brain fog, lack of concentration, and memory difficulties
- Feelings of depression and anxiety
- Significant mood disruption and mood swings
- Psychological disturbances such as violence and/or hypersexual activity
- Food cravings, binges and/or addictive-type behaviors
So, how is it that some people can be exposed to “normal” levels of these ordinary, everyday chemicals and feel completely fine while others are slammed with a barrage of odd, unpleasant, and life-disrupting symptoms? And how on earth are you supposed to figure out if you are indeed struggling with a sensitivity to chemicals within your environment?
So, How Is Multiple Chemical Sensitivity Officially Diagnosed?
We still don’t have an exact answer as to why some people respond severely to exposure to certain chemicals, but it’s speculated that it is likely a conglomeration of factors that may include:6,7,8,9
- An overactive immune response – triggering your immune system to interpret low levels of certain chemicals as a threat and launching an allergic type response.
- Impaired detoxification – causing a build-up of chemicals that overburdens your body.
- Inflammation of your nervous system – altering the way your sensory neurons respond to stimulants like smells and chemical compounds.
- Limbic system kindling – with synthetic chemicals traveling from your nasal passageway directly into your brain where they stimulate electrical activity throughout the region of your brain known as the limbic system.
But because we don’t know for certain what MCS stems from, combined with the fact that symptoms vary widely, this condition can be downright tricky to diagnose. Diagnosis is even trickier due to the fact that many conventional healthcare practitioners are not familiar with MCS and can mistakenly dismiss these symptoms as being exaggerated or worse, accuse patients of imagining their symptoms.
So at this time, there is not a singular or definitive way to officially arrive at a diagnosis of multiple chemical sensitivity. A diagnosis is usually made through a process of trial-and-error – eliminating the possibility of other potential diagnosis and relying on close examination of symptom triggers. But, with recent research, we may be on the path to having a more concrete and measurable way of officially diagnosing this complex condition.
Emerging Diagnostic Markers: It May Be Possible to Reliably Diagnose Multiple Chemical Sensitivity in the Future
Recent research has found that when properly timed, certain tests do indeed indicate distinct changes that may be able to give us a more definitive diagnosis of MCS. Studies suggest that if MCS is suspected, a comprehensive assessment of seven body systems should be completed that include evaluation of:10
- The central nervous system: Using tests such as electroencephalogram (EEG), MRI, brain mapping and SPECT, among others to evaluate brain function
- The peripheral nervous system: Using nerve conduction and/or neurometric (perception threshold) studies
- Nose and sinuses: To evaluate for thickened mucous membranes, and/or findings consistent with atrophic rhinitis or sinusitis
- Pulmonary function: Utilizing a spirometer and chest x-rays if indicated
- T-cell subsets: To identify if there is an increase in circulating immune cells
- Chemical antibodies: To determine if there is a spike in antibodies after exposure
- Evidence of autoimmunity: To identify the presence of an autoimmune response triggered by chemical exposure
If four or more of these seven systems present with any abnormalities, the suspicion of an MCS diagnosis can be strengthened. While more time and research are needed to truly create a comprehensive and concrete way to reliably diagnose MCS, this criteria and these findings bring us one step closer to finding a practical approach to diagnosis of this life-hindering condition.
But what happens after a multiple chemical sensitivity diagnosis? Is there a treatment?
Is There A Treatment for Multiple Chemical Sensitivity?
The answer to that question is – it’s complicated. While there’s not necessarily a cure in the sense that a treatment or medication can fix MCS, there are some steps you can take to manage your symptoms and drastically improve your quality of life. Here’s what I recommend.
- Modify your environment: While you can’t control everything about your environment, taking steps to make your home and workplace as safe and non-triggering as possible can have a monumental impact. To learn more about how you can make your spaces safer if you have MCS, check out the following articles:
- Lower your toxic burden: Minimizing your overall exposure to irritating chemicals by doing things like filtering your air, purifying your water, and swapping out toxin-filled products for low-tox choices can help your body better cope with exposure to chemicals.
- Support your detoxification pathways: This one goes hand-in-hand with lowering your toxic burden. While it’s crucial to minimize toxins coming in, it can also be helpful to boost the amount of toxins going out by incorporating things like detox binders, infrared sauna therapy, and dry brushing.
- Rewire your brain: MCS can quite literally rewire your brain – making recovery an uphill battle if you don’t address the mental and emotional components right alongside the physical. Click here to read more about the link between MCS and your brain and how you can heal.
- Support your gut health: The health of your digestive tract and your microbiome (the microbes that inhabit your gut) play a monumental role in every single facet of your well-being – including your ability to cope with chemical exposures. Click here to learn more about how you can best prioritize keeping your gut happy, healthy, and balanced.
- Enroll the help of a specialist: While making changes on your own can certainly go a long way, enrolling the help of experienced professionals can save you a ton of time, effort, and frustration. I cannot overemphasize the importance of working with an experienced Integrative and Functional Medicine Doctor if you are concerned that you’re struggling with MCS.
So while there’s not a one-size-fits-all treatment for multiple chemical sensitivity, with the right approach, you can minimize your symptoms and find significant relief from this confounding condition.
Are You Worried You Might Have Multiple Chemical Sensitivity?
If you’re grappling with unexplained symptoms that seem to pop up out of nowhere or have noticed that certain places or smells make you feel ill, it may be time to consider the possibility of multiple chemical sensitivities. If you’re concerned that you may be dealing with MCS, I cannot overemphasize the importance of working with a practitioner who has an understanding of this complicated condition. Because unfortunately, many conventional medicine doctors simply don’t grasp the severity or complexity of MCS and other environmentally triggered illnesses.
And being dismissed and misunderstood when you’re struggling with a condition that no one else around you seems to understand can feel defeating and isolating. But you, my friend are not alone, and there is hope for healing. Simply being heard, understood, and connected to others who get what you're going through can be a big piece of the puzzle in your healing journey.
That’s why I’m dedicated to being a voice and a beacon of hope for those struggling with these “invisible” illnesses that don’t always fit into the neat, tidy boxes used in conventional medicine. So, if you’re looking for support and education, be sure to browse through my blog and YouTube channel, and sign up for my weekly newsletter by entering your name and email in the form at the bottom of this page. And I strongly encourage you to pick up a copy of my book Unexpected: Finding Resilience Through Functional Medicine, Science, and Faith where I dive into my own journey with environmental sensitivities, how I healed, and some steps you can take to get back to feeling like you again.
Now it’s time to hear from you. Were you surprised to learn that we may be on the way to having the ability to officially diagnose MCS? If you’ve grappled with MCS, what strategies have helped you the most? Leave your questions and thoughts in the comments below!
Resources:
- Multiple Chemical Sensitivity | Johns Hopkins Medicine
- Multiple Chemical Sensitivity – PMC (nih.gov)
- Multiple Chemical Sensitivity (nih.gov)
- Multiple Chemical Sensitivity (MCS): Symptoms, Causes, treatment (webmd.com)
- Possible Mechanisms for Multiple Chemical Sensitivity: The Limbic System and Others –
- Multiple Chemical Sensitivity Syndrome | AAFP
- Multiple Chemical Sensitivity – an overview | ScienceDirect Topics
- Multiple Chemical Sensitivity (nih.gov)
- Possible Mechanisms for Multiple Chemical Sensitivity: The Limbic System and Others – Multiple Chemical Sensitivities – NCBI Bookshelf (nih.gov)
- Diagnostic Markers of Multiple Chemical Sensitivity – Multiple Chemical Sensitivities – NCBI Bookshelf (nih.gov)
* These statements have not been evaluated by the Food and Drug Administration. The product mentioned in this article are not intended to diagnose, treat, cure, or prevent any disease. The information in this article is not intended to replace any recommendations or relationship with your physician. Please review references sited at end of article for scientific support of any claims made.
17 Comments
I was diagnosed with MCS by my allergist (before I knew I had issues with mold Lyme etc.) Unfortunately they no longer test for it nor treat it (if it was even possible).
It is a very isolating and difficult to bear disease for sure. Knowing the cause of the challenging and strange symptoms helped in a small way.
One physician recommended things to balance Th1/Th2.
I also read about glutathione being supported by eating Brazil nuts, 2 per day.
And, I think Terry Wahls MD’s diet is top notch for supporting methylation.
EAT STRICTLY ORGANIC FOODS!
Read Stephanie Seneff PhD’s book about glyphosate, titled “Toxic Legacy”. She writes that even non-GMO nuts, seeds, grains are all sprayed with glyphosate to dessiccate them prior to harvest, making harvesting easier and less expensive.
Ahh that’s so nice for the farmers, but what about the lawsuits, in which those afflicted with non-hodgkins’ lymphoma no thanks to glyphosate exposure, are being won in droves? Stay away from conventional foods and eat strictly organic. And be aware, that even “Natural” foods can be GMO, per USDA law! Now that is crazy, misleading and also, health-whonking. Consumer beware!
Those of us with MCS *must* be fanatical about purely organic foods, purely and well-filtered water, avoiding noxious chemical soaps, cleansers, shampoos, bar soaps, etc and using as natural products as possible…..
Thank you so much Dr Jill, for addressing this wrongfully down-rated topic. I think doctors have every ethical obligation to listen to their patients and learn about things that may, or may not, be on the mainstream medical radar. Further, I hereby assert that those who brush off people with symptoms and call them “all in your head”, are guilty of malpractice. It’s purely irresponsible!
We patients who struggle, must educate doctors. Thank you you all for helping and thank you again, Dr Jill, for compassionately, knowledgeably and responsibly addressing this important topic. We appreciate you!! 🙂
You are so welcome! 🙂 I will keep writing all that I can on the topic… and work to educate doctors
Thank YOU Dr Carnahan for this information! Toxic chemicals are hellacious! They are toxic to EVERYONE, even people oblivious to them. When you smell a scent, the chemicals are already in your bloodstream. People with chemical sensitivity truly are the human canaries in the coal mine of this toxic soup that our world has become. I got fired from a job in California the day after mentioning feeling sick from all the cologne and perfume in the office. I’m on a mission now to educate the millions of people attending churches in the US to create Fragrance-Free Sunday Services. Most toxic fragrances contain endocrine disrupting chemicals (EDCs) that are nicknamed “gender benders”!
Thanks Dr. Carnahan for the great article. I have been diagnosed with Mast cell activation disorder at Mayo Clinic. In reading many articles on MCA they have similar symptoms to MCS but at Mayo they have a very narrow definition of MCA and do not include the similarities to MCS. I have most of the symptoms that you listed, and I have reactions to fragrances, perfumes, cleaning products, furniture, cardboard, detergents, pesticides, fertilizer, etc. In your research, is there any connection between MCA and MCS?
MCAS is more related directly to mast cell activation and you can read more HERE about the connection between MCAS and MCS
Dr. Jill,
I believe I have MCS and have been struggling with this for over 20 years. This started for me after cancer treatments. Have you seen this related for others?
https://afmsafecoat.com/ Nontoxic home building, painting and remodelling materials.
For nontoxic flooring, search wood floors that are laminated and then baked out under a blacklight, so there is no offgassing! Or consider tile flooring with grout, etc.
For cabinetry, consider wheat grass board instead of plywood. Plywood is treated with formaldehyde. Wheat grass board is sustainable, renewable and far less toxic, unless treated with glyphosate, check into that carefully.
https://www.bendsoap.com/ Family owned business, home made goat milk soap, organic, no synthetic anything except some with synthetic fragrances, but this is disclosed. Most are scented using essential oils. Very velvety and luxurious to the skin, and very pure!
https://www.moonvalleyorganics.com/ Hand made organic skin and hair care products, very nice quality ,expensive but very good.
thank you!
I have known about this for 40 years. It has been a living hell. I have a long history of MCS. My children also have been effected . I have seen probably 50 doctors. Everything has been a dead end. I am a nurse and a psychotherapist. I have studied alternative medicine for years. I am pretty much where I started, but more knowledgeable.
The same is true for me. I’ve had MCS for 22 years. I have tried and read everything under the sun. Too many things to list here, but I’ve tried them all. The only thing that has ever worked for me is avoidance. It works 100% of the time. And housing is an absolute crap shoot every single time. I wish now that I hadn’t wasted so much time and money trying to “heal” my MCS. I frankly do not think it is possible. Occasionally, I will read a story of someone who is “cured.” My immediate thought when I read their story is that they didn’t actually have MCS, but possibly another issue such as anxiety. It’s possible that if a cause is finally determined, there could be hope for recovery. However, in order for that to happen research funding has to be made available. Many doctors still don’t believe it’s a real illness, so having it taken seriously by the majority of the scientific community continues to be a tall order. Oftentimes, such underrepresented issues are brought to light by celebrities, then it becomes something that is real, gets attention, and therefore money. I have yet to see any celebrities coming forward if they do have the illness. We can only hope. My guess is that more and more people are going to continue to develop MCS (given the chemical use we celebrate in this country), but they won’t be probably diagnosed and will be “treated” for something else that is not the problem. Sigh.
Thank you for sharing your experience and thoughts, Lisa! I agree that many physicians are unaware of diagnosis and treatment of MCAS, however, I am seeing great improvements and responses in my patients with appropriate treatments so there is hope!
Dr Jill, what are MCS patients to do if we need an operation, ie, anesthesia? This may be dangerous to some of us. What are your thoughts and recommendations in such a situation? Gadz.
Prepare, hydrate, detox
Thank you Dr Jill! What are the best ways to prepare, and to detox? I am sure those answers are very individualized. It would be great to see your answer here, and perhaps an upcoming article. Thank you so much for all you do. You are wonderful, and we appreciate you.
Thank you for trying to educate others about these conditions! I suffer from MCAS, MCS, and other autoimmune diseases. It’s definitely life changing. If we could only get others to realize how much. I understand. There was a time when I wasn’t affected this strongly. But as I’ve gotten older, my conditions have worsened, to the point where it is difficult to leave my fragrance free home or have anyone else in my home to visit. It is my hope that research and education will continue into how these harmful chemicals affect everyone, but just us with these severe reactions.
I’ll take a wild guess and say MCS comes from DDT released into our collective environment for years.
Share: